Meet Kaleb

Updated: Jan 12

Kaleb is an adorable 20-month-old who was diagnosed with an Atypical Teratoid Rhabdoid Tumor (ATRT) in February of this year. He lives with his parents and 3-year-old sister. Prior to his diagnosis, both of Kaleb's parents were gainfully employed. However, following his diagnosis, both parents took a leave of absence from work

in order to provide care and support to Kaleb as he recovered from his urgent brain surgery.

Kaleb's condition left him with extremity weakness which resulted in in-patient rehab while pathology resources were pending. Given the severity of Kaleb's disease, his parents opted to pursue palliative care to be able to enjoy as much time with Kaleb as a family as possible. Because of this, his mother remained out of work from February until the mid-August and was faced with having to return to work or lose her job entirely. While Kaleb’s family is staying strong, their circumstances have caused significant financial and emotional stress on the family.

With the assistance of the Hands for Holly Memorial Fund, a Family Reach LiFT partner, a grant was immediately funded to assist with their rent and helped cover the cost of a new car that was needed for the family to have reliable transportation to get to treatment.