Alexandra was diagnosed with Stage IV high risk Neuroblastoma in April 2004 at the age of four. Her family was told she most likely would not survive more than five years. Now 20 years old, she has beaten the odds many times, but has had multiple relapses.
Since November 2018, Alexandra has undergone chemotherapy and MIBG therapy which required one week of inpatient isolation due to high exposure to radiation. This spring, Alexandra spent ten days in the hospital for surgery where two large tumors were removed from her liver – her recovery especially stressful because of COVID-19. During the 16 years she has been battling cancer, she has been completely dependent on her parents who have driven her to Charlotte from Kannapolis and participated in all of her treatments and follow-up visits.
With the assistance of the Hands for Holly Fund, a grant was provided to Alexandra’s family and was immediately issued to help assist with their mortgage while their family focuses on Alexandra's care.
Alexandra’s father shared the challenge of their financial journey over the years:
“We have certainly seen more than our fair share of hardships in 16 years, and one very heavy hardship is the financial burden this fight places on us families. I had a big corporate job and had the 401K and retirement plans in place, but when she was diagnosed at the age of four, we didn't care about money. We were told she would most likely not make it past 5 years. We were even rushed to do our Make-a-Wish trip due to the dire circumstances. My wife and I took off work and used our savings to finance our flight.
"It was not until some time had lapsed that we realized we were going to be in this fight for a long time and started to regroup on the finances, but the damage had been done. We started to get help and we have been in that world ever since. This disease reshapes the entire family, so I am an expert when we discuss how and what are the most important things to focus on for the long-term. Thanks to your organization, we can continue to focus on our daughter. I want to thank you from the bottom of my heart for your foundation's very generous gift to help us continue to take care of our daughter during her treatment and recovery of this disease.”
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Update (11/9/2020): It is with heavy hearts that we share that Alexandra lost her battle on November 8, 2020. Her father shared, “She fought her disease for exactly 16 years, 6 months and 16 days..... until it finally got her. She fought so very hard to win her battle and along the way had so many great times and brought so many people together.” We send our deepest condolences to her family and friends.